Charity opens national office in Pinchbeck

A national charity has opened its new head office in Pinchbeck.

Haemochromatosis UK supports the around 380,000 people who have been diagnosed with the genetic condition which untreated leads to patients having toxic amounts of iron in their body.

The charity was founded in 1991 and is run by patients. It was previously in Rugby but has now moved into new premises on Enterprise Way.

And it was officially opened recently by South Holland and the Deepings MP Sir John Hayes.

A spokesman for the charity, said: “Haemochromatosis UK were delighted to welcome Sir John Hayes CBE to the opening of their new national headquarters, located on Enterprise Way.

“Genetic haemochromatosis is the UK’s most common inherited genetic condition.

“There are over 380,000 people affected in the UK, yet only a few thousand have been diagnosed and are receiving treatment.

“People affected by genetic haemochromatosis find it difficult to process iron in their bodies. Over time (usually several years or decades), the amount of iron builds up.

“This is known as iron overload, which can lead to chronic fatigue, painful joints and issues like diabetes, liver and heart disease.” Haemochromatosis UK’s Chief Executive Neil McClements welcomed Sir John’s visit – “Genetic haemochromatosis is too often a silent killer. Early diagnosis saves lives.
We’re thrilled that Sir John shares our passion to raise awareness of this treatable condition. We’re grateful that he made time in his busy Christmas schedule to open our new national offices in Spalding.”

Sir John said: “It’s great to have the organisation here in Spalding.

“Haemochromatosis affects an immense number of people – it’s more commonly known as iron overload. But the problem is although around 380,000 people may be affected, many just don’t know – and we need to raise awareness.”